Resignation: neurology

Discussion in 'Beer Talk' started by Benesi88, Dec 1, 2015.

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  1. cello

    cello Initiate (0) Oct 17, 2013 Pennsylvania

    Sorry to hear about your situation. Wishing you and your family well as you learn to cope with your situation.
     
    utopiajane likes this.
  2. floridadrift

    floridadrift Initiate (0) Oct 24, 2014 Florida

    Stay strong man, don't keep thinking about it and embrace every day. Knowledge is power!
     
  3. Stignacious

    Stignacious Pooh-Bah (1,672) Aug 24, 2011 New York
    Pooh-Bah

    Best wishes
     
  4. beerjerk666

    beerjerk666 Grand Pooh-Bah (4,649) Aug 22, 2010 Florida
    Pooh-Bah Trader

    Wow, that's a real bad deal man. Best wishes for your healing.
     
  5. Jaycase

    Jaycase Grand Pooh-Bah (3,302) Jan 13, 2007 Illinois
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    All the best, OP.
     
  6. MacMalt

    MacMalt Grand High Pooh-Bah (6,246) Jan 28, 2015 New Jersey
    Pooh-Bah Trader

    Sincere best wishes to you and your family!
     
  7. Benesi88

    Benesi88 Initiate (0) Jul 11, 2013 Massachusetts

    Yep! The first neurologist I saw tested me for a wide variety of diseases/conditions. Tick bites/ Lyme came back negative multiple times. We have ruled out: ALS, all forms of muscular dystrophies, Leukemia, Crohn's, Celiac, brain tumor, MS, Parkinson's, Wilson's, Lupus, etc. As far as symptoms go, it is somewhat close to Parkinson's, but I don't have that as my movements are more dystonic than PD. As far as I know, we have virtually eliminated Huntington's, as there are so few cases that don't have a genetic link (plus my cognitive reasoning skills haven't depreciated).

    The nerve conduction study I had to eliminate ALS and dystrophy wasn't exactly my idea of a fun time, i'd rather be sipping on a Julius, but I'm very thankful to know that I don't have either of those.

    The chief concern of the non-dystonia symptoms is we *think* I might be exhibiting petit mal seizures, as well. Who knows how this all ties together. Each dystonia case is very unique. Most people just have it in their neck.

    I can still work (I'm a financial analyst), which I'm very fortunate on that front for now.

    The first neurologist asked if I was taking any herbal medications from overseas. Immediately, my dad thought of hops coming from all over the world. Need not worry fellow BAers, hops cannot give you dystonia!
     
  8. Highbrow

    Highbrow Pooh-Bah (1,684) Jan 7, 2011 California
    Pooh-Bah Trader

    well. retire from drinking. don't necessarily retire from us. best wishes in overcoming your condition. thanks for having the courage to share as well.

    cheers!
     
  9. Benesi88

    Benesi88 Initiate (0) Jul 11, 2013 Massachusetts

    Truth- good point. I can always smell the beers, too! haha what a tease Trillium IPAs are going to be!
     
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  10. mstrcrwly

    mstrcrwly Pundit (888) Dec 21, 2013 New York
    Trader

    Sorry to hear that bro..good luck with your treatment..will crack open a BA beer this weekend for you
     
  11. mstrcrwly

    mstrcrwly Pundit (888) Dec 21, 2013 New York
    Trader

    I'm in the medical profession and a Charity raffle is a great idea..i'm in..especially since i haven't had the pleasure of trying anything from Trillium
     
  12. MicTar

    MicTar Initiate (0) Jul 20, 2015 Texas

    So sorry to hear this. I will keep you in my prayers.
     
    lester619 likes this.
  13. maxifunk777

    maxifunk777 Initiate (0) Feb 19, 2015 California

    I not sure if we have interacted with each other over my 1st year on this site but I do wish you good health and hope a recovery is within reach or at least a vast improvement to your quality of life Good luck to you sir God Speed!
     
  14. LeRose

    LeRose Grand Pooh-Bah (3,427) Nov 24, 2011 Massachusetts
    Pooh-Bah Society Trader

    Sorry to hear this. Prayers to you and your family. It is awesome that you are also making the effort to educate and increase awareness.
     
    Benesi88 likes this.
  15. bozodogbreath

    bozodogbreath Savant (1,082) Oct 19, 2006 Indiana
    Trader

    I am sorry to hear this. I certainly don't envy you over the nerve conduction test. That test is a bitch. Best wishes.
     
  16. Smokingtony

    Smokingtony Initiate (0) Nov 14, 2014 Texas

    Kinda puts the whole "it's just beer" thing into perspective.

    Dystonia, eh? I'll read up on it. Education is the best weapon.
     
  17. matcris

    matcris Initiate (0) Sep 17, 2015 Arizona

    Haven't chatted with you Bud, but it sounds like you're a tough customer. Hang in there. You do what you can do. You do what you need to do. All the best.
     
  18. wyatt

    wyatt Initiate (0) Nov 18, 2009 Louisiana

    I wish you the best of luck. Just keep fighting.

    Maybe try to get really into tea.
     
  19. lester619

    lester619 Initiate (0) Apr 17, 2009 Wisconsin

    Just wanted to echo everyone else and wish you all the best. My dad was diagnosed with a mild form of Parkinson's a couple years ago. I know they have made a huge amount of progress in treating neurological disorders and I'm sure there's a cure for both of you coming soon. God bless.
     
  20. HorseheadsHophead

    HorseheadsHophead Grand Pooh-Bah (3,581) Sep 15, 2014 Colorado
    Pooh-Bah

    Man, I'm so sorry to hear that. :slight_frown:

    Good luck to you.
     
  21. donspublic

    donspublic Grand Pooh-Bah (3,356) Aug 4, 2014 Texas
    Pooh-Bah Society Trader

    God be with you and your family. You don't have to leave, you can still hang around and laugh at the silly shit that goes on here now that you see if from a different perspective. Take care of yourself
     
  22. JebBeerFish

    JebBeerFish Initiate (0) Nov 15, 2014 New Hampshire

    Sincere wishes for an optimal treatment plan, and good luck.
     
  23. dgmirelli

    dgmirelli Initiate (0) Mar 21, 2015 New York

    sorry about the news, best to you and your family
     
  24. Tilley4

    Tilley4 Pooh-Bah (2,655) Nov 13, 2007 Tennessee
    Pooh-Bah Society Trader

    Life > beer... sorry to hear this...
     
  25. lordofthewiens

    lordofthewiens Grand Pooh-Bah (5,869) Sep 17, 2005 New Mexico
    Pooh-Bah Society Trader

    That's shitty news.
    My best to you and your family.
     
  26. CanadianBacon

    CanadianBacon Initiate (0) Aug 26, 2015 Canada (QC)

    Damn bud, That really sucks, I hope in the future they'll find a way for you to be able to raise your glass with us again. My prayers go out to you and your family. Best of luck.
     
  27. VABA

    VABA Grand High Pooh-Bah (6,409) Aug 8, 2015 Virginia
    Pooh-Bah

    Sorry to hear that.

    Wishing you the best.
     
  28. DoctorZombies

    DoctorZombies Grand Pooh-Bah (5,806) Feb 1, 2015 Florida
    Pooh-Bah Society Trader

    So sorry to read your news. God bless.
     
  29. Benish

    Benish Pooh-Bah (2,360) Mar 13, 2013 Utah
    Pooh-Bah Trader

    Very sorry to hear this. Wishing you well.
     
  30. pat61

    pat61 Initiate (0) Dec 29, 2010 Minnesota

    Good luck!
     
  31. utopiajane

    utopiajane Initiate (0) Jun 11, 2013 New York

    So sorry to hear this. All the best .
     
  32. EMH73

    EMH73 Grand Pooh-Bah (3,579) Sep 16, 2015 New York
    Pooh-Bah Trader

    My thoughts and prayers are with you.
     
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  33. JLaw55

    JLaw55 Pooh-Bah (2,171) Jul 10, 2014 Missouri
    Pooh-Bah Society

    So sorry to hear man. While I know we all love beer, Life is most important. I wish you well.
     
  34. SammyJaxxxx

    SammyJaxxxx Initiate (0) Feb 23, 2012 New Jersey

    Good luck in battling this terrible condition. I will keep a good thought for you and your family.
    I have had experience with family members suffering neurological disabilities, so I have the slightest inkling of what you are going through.
    Fcuk dystonia.
     
  35. Benesi88

    Benesi88 Initiate (0) Jul 11, 2013 Massachusetts

    For the raffle, what are the wants? I would appreciate any feedback so I can try to make an epic raffle basket.
     
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